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Tag Archives: Life

Catching up with cosiness


Well, things have moved on a pace with “Operation Cosy Cats” my plan to create a number of 12×18 inch (ish) selection of blankets for the homeless kitties. I am working on number four and must say rather enjoying my afternoons of quiz shows and crochet. Some have been done with two strands of double-knit yarn together and they grow quickly, where as the single strand ones, while more compact make for slower progress. Needless to say I have sourced several other patterns to try. I am pleased with the outcome and could have quite a number completed by Christmas, although the recent heatwave made stitching awkward as sweaty hands are not good for the yarn, so I had to take a few days off (did pattern research instead).

As for other ‘to-do’ things, hmmm, well, I guess it’s time to write the list and try my best. So deadline end of August this year.

  • Complete two more blankets
  • Unravel troll hat hair
  • Declutter & sort all three desk draws
  • Source office chair suppliers, arrange in-home test
  • Buy new microwave
  • Source new fridge

As some might have read from previous post, I need to sort a chair so I can work at my desk properly. I like working at my desk and have a number of jobs, projects that need concerted spans of attention.  I don’t know what the solution will be, I cannot use a laptop because of how I type. There has to be an answer.

Grand day out next week, we’re off to Greenwich. Looking forward to the river taxi and exploring the Cutty Sark. I’ll be in all kinds of shattered for a couple of days after, hopefully there will be a couple of photo ops and I’ll blog sometime after.

Back to it….. Tennis to entertain today as I stitch along.

 
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Posted by on June 24, 2017 in General, Life, Projects

 

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FSH awareness – Oh I am so aware


Today is #WorldFSHDay …. I am one of the 2,000+ that has this condition. It dictates everything everyday and every night. There is no treatment, no management and no cure. Also there is little support, understanding or assistance from the people and organisations designed to do otherwise. It’s not photogenic, it’s not compassionate, it’s not escapable.

I pull no punches.  There is nothing remotely comfortable about the constant struggle to just exist.

Since it’s noticeable onset when I was 4 FSH has slowly robbed me of all my achievements, my purpose, my abilities and my pleasures. I can no longer work, drive, or play piano; be spontaneous, be independent, be principal in choices. Things I can do have a strict time limit otherwise there are consequences of energy and strength.  I can only go anywhere, do anything I want, if and when someone else is available.

What are you wearing today? Did you choose it? All my clothes are dictated by FSH, right the way down to my panties and bra. I never choose something because I like it.  Let’s move on to food, what made you decide on your lunch today? Something tasty? Did your decision depend on whether you can lift it to your mouth, or whether you can easily swallow it after chewing, mine did. 

Spend a moment considering this, try making a cuppa without bending your knees, hips, back, standing on tip toes, without reaching higher than your shoulders, using only your thumb and first finger to hold anything. That is the level of concentration and unsteadiness I live everyday, doing everything, anything.

A bad day is when it takes 3-4 attempts to get stood up from the three only places in the world I can (my bed, my toilet and my sofa spot), a struggle is when it takes 5-8 attempts, if it takes more than 8 don’t ask. My reward for the effort? To do it all over again and again and again, after all how many times a day do you stand from sitting?

It is a one way street, once a muscle set degenerates, there is no recovering it, it’s set to get worse. Tomorrow could be the day my muscles no longer support me, the next day could be the day I experience breathing difficulties, the day after that could be the day that……..you don’t want to know. Then again it could be next week, month, year, just one day.

Right now I am having to figure a solution about my desk. I cannot get up from the chair, but I do not know whether I can use a chair that rises. I have to find a local company that has such a chair that they can bring to my abode for me to try insitu. Then I have to decide whether it is worth the £3,500 ($4,500) expenditure, (plus service and maintenance costs).  Did you notice that paragraph said ‘I’? That’s because my needs cannot be met by the standard, limited catalogue of equipment available via my Occupational Health team.

Hey ho, must go, I need a pee and to make the journey productive I’ll put my mug and plate on the chair I use as a frame and hopefully get them as far as the kitchen.

Ain’t life fun!

 
8 Comments

Posted by on June 20, 2017 in General, Life

 

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Death, Destruction & Drivel 


I make no apology for the next paragraph.

I have no interest, in fact I do not want to know anything about destructive perpetrators. I am not interested where they were born, to what parents, I am not interested in where they went to school or dropped out of university, I am not interested in the countries they visited or their family members. I am only interested in hearing one of two things, the perpetrator is dead or the perpetrators are arrested. End of. Nuff said. Anything more gives credence and advertising to groups who do not deserve my ear.

Now onto other things.

Hearing about the cowardly actions of an individual could not do anything but shock, hearing how young children and teens were fair game targets is disgusting, hearing the heroic endeavours of trained professionals, entrepid volunteers, and selfless strangers was endearing and touching. 

When there is an attack on a community, it takes that community to come together and fight back with kindness, whether a church/mosque/temple/tabernacle opens it doors for shelter, whether it is hard working taxi drivers who turn off the meter and drive people home safely, whether it is a homeless beggar who cradles a dying lady so she’s not alone, to reaffirm that there are strands of humanity around us in this busy, stressful, enclosing, faced paced times.

As for the media, stop trying so hard to be the first, find the worst, to criticise and condemn, you are swaying opinion, blackening good deeds, generalising those to be feared, and generally repeating the same thing over and over to fill the hours of broadcast.  Only on tv are crimes investigated, forensic tests done and results analysed and the bad guys questioned into a confession in around 45 minutes.

 
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Posted by on May 25, 2017 in In The News, Life

 

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What’s my X for?


Well, a little around three hours ago Prime Minister Theresa May has called for a General Election and I am already tired of the media reporting and I’ve got another seven weeks until Election Day  (June 8th) and the harping and bemoaning after the result. Is there such a thing as election reporting fatigue?

But this does drag up a recurring question – exactly what am I voting for with my all powerful X?

  • Is it Mr(s) Somebody
  • Is it Mr(s) Somebody representing This Political Shambles Party
  • Is it This Political Party
  • Is it all of the above
  • Is it none of the above coz we don’t know

People griped about not having voted for TM to be PM, well I’ve never had a paper asking me to select a PM. I’ve also never had a tick box for a coalition so absolutely nobody ‘elected’ the Government in 2010.

So, batten down the hatches for political fliers filling up the recycling bin. Go raid the charity shops for cheap DVD’s to avoid the endless media drivel. Deactivate your social media accounts as opinionated ‘erberts get hot under the collar over trite trivialities.

Already the media reporters have nick-named this the #BrexitElection, well only if you (the media) harp on and don’t give equal time to issues such as education, NHS, social care, police and justice, defence, taxation, benefit system AND how changes can be implemented, costed and monitored. But I am a stupidly common sense semi-intelligent person, so I know that ain’t gonna happen.

*sigh* if I go missing again, I’ve gone into hiding, or hibernation, or been committed…

 
15 Comments

Posted by on April 18, 2017 in Grumble, In The News

 

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When Enuff Is Enough


It doesn’t have to be a Friday thirteenth for a day to test, frustrate or just get the better of me. Major Murphy, Sargent Sod and Field-Marshall Fate must have had a conference and decided to wage war on my patience, resilience and strength.

Last weekend I sat with note pad and pencil and went through every page, paragraph and sentence of the website, noting down edits, amendments, corrections and general tidying that needed doing; I made notes about what to do for a whole new page, a significant addition to a page and a complete reconfigure of the site menu and presentation of the music bio. That came to seven pages, and I haven’t even touched the photos and videos (may not sound like it, but I enjoyed it, I was making headway and planning).  Tuesday morning I sat at the desk and worked through one page of straight forward corrections, about an hour and a half.  The cost for doing that, I couldn’t get up from the desk, no amount of umph-ing, trying, willing, wishing or expletive resulted in a successful up, so I did the chair shuffle to the sofa and get up from there.  In the afternoon I worked on my crochet project and the price for that was struggling up-ness from the sofa, loo and bed. My reserves were flat, I’d had enough, I get angry, I am not wanting to dance on tippy toes across a high wire, just stand up, not rocket science is it, but boy do I have to work at it, every, single, time. Count how many times a day you stand up, imagine having to run up strains every time, you’ll quickly start thinking “Do I need to get up and do that, can it wait and then do two or three things together”.

Wednesday I created some new graphics, another hour or so at the desk, but I cheated, Big Sis was here so she could lift me, when she arrived. Yesterday, I began the task of creating an eye catching new page sub menu, making sure the HTML I write is correct to every . > and “.  After a little more than an hour I sat back, looked hard and hit the delete button, it was crap. Great. I am sure my frame of mind is clouding my vision for this new page, so I cannot see what I want to work towards.  Again, I couldn’t get up. Again the chair shuffle to the sofa, an afternoon spent on the crochet project, and again difficulty getting upright, but hey, on the bright side it only took me an hour to get from sofa to kitchen with loo stop rather than the two hours on Tuesday.  They say finding the positive is a good thing, I hate that kind of thinking, because it does nothing to get my arse off the wooden toilet seat. I am all about the practical, it’s ingrained. 

For some time getting upright from the desk has been an issue, and I do not see a way around it. I’ve tried tweeking my method, restricting the duration at the desk (I’d prefer to be there two or three hours), it makes no difference. I think the desk height is a tad higher than the draws I use beside the bed or the sink beside the loo. Can’t change any physical aspect but I need to be able to sit at my desk, there is enjoyable work to be done, I can occupy myself and feel some satisfaction. I cannot use a laptop as I cannot hold my hands/arms over the keyboard to type. I need my desk. 

I know there are battery powered toilet seat risers. I know there are seats that rise and tilt, we see the tv ad often enough, but things that tilt will throw me to the ground. But easily useable desk chair that behaves like a dining chair, is there such a thing.

Historically I have known the work-a-rounds to manage, how equipment can help, but in this day and age, with my level of deterioration, is there an answer other than ‘you cannot do it anymore’?

 
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Posted by on April 14, 2017 in Grumble, Life, Projects, Tech, Website

 

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AWOL now back, more rejuvenated & rebellious 


Lol, my screw literally did fall out! I use a dining chair as a walking frame (the seat also acts as a carry shelf), the seat pad is screwed from beneath but recently one of the screws was unscrewing itself and I kept tightening it but a couple of weeks or so ago there was the sound of something hitting the floor, yes my screw fell out.

I’ve had a fabulously, relaxing, fun, couple of weeks as my BFF in the whole Universe came to play I mean stay.  Lazy mornings, tasty foods, evening DVD’s, selfish indulgence galore. An obligatory visit to the local yarn store (new crochet project in progress). Whilst there a flyer was spotted on the counter about a film being shown at the Library, as part of the community cinema. Sully, is a film we have both been wanting to see, so we trotted down the street and attended. It was an excellent film, I had to remind myself I was in public and not to growl at the personage I disliked. It was totally engrossing, thoroughly watchable and seeing it on a larger screen with surround sound added to the experience.  There is always one thing each visit that crumples us both into tearful laughter. This time it was our efforts to send her Dad a video of us singing happy birthday. The snag was keeping the thumb on the go button, it slipped and the looping short video made me look like I had a nervous tic, the dang app sent it so we had to type ignore that. Then inn the second attempt after explaining our error as we took a breath to sing, thumb shifted stopping the filming. We gave up and recorded a video and then sent that in messages. Her poor Dad must have wondered what on earth was going on! Still he and we all had a good hearty laugh.

All too soon she was packing for home, already counting down to her return (168 days).  We had jested that her cats might be happy to have her home, but also cold shoulder her for leaving in the first place, her cat Hunter came running as soon as he heard her voice and was rubbing himself round her legs, so pleased to have her home.

So, yes, a change is as good as a rest.  

Oh yes, I had a birthday in there too, lots of goodies and treats. Next year is an “0-heck” number, yikes!

Back to making working lists

  • Work on the web site
  • Carry on with crochet project
  • Try and keep things tidier
  • Research Greenwich trip
  • Clear and tidy desk + draws
  • Chase up Neuro Consultants Letter

That should do for now.

 
6 Comments

Posted by on April 7, 2017 in General, Life, people, Projects

 

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I Think I Am Bad For Business!


Whilst twiddling my thumbs in the wee small hours, a thought percolated in my noggin. Apart from the last place everywhere I have ever worked no longer exists!

While at school the obligatory two-week work experience was done in the admin offices at the local psychiatric hospital. Many years ago the former naval hospital was refurbished into numerous plush, sought after, town houses and apartments.  During my studies at College to get letters after my name I worked for a period of time at a fabrication business, which was taken over by a larger one and then everything moved away (also the winter snow meant College closed but I still went into work through the snow drifts).  After completing my courses (and getting those letters after my name) I went to work in a section of the Department for Education, hmm, yeah, well, that was partially disbanded and partially amalgamated with other sections.  Off to a speciality advertising agency, if you needed your logo and details printed on things, we sourced it, pens, key rings, clothing, carrier bags, travel adaptors and umbrellas, manic in a word, well it was the eighties. 

When that went to the wall, off I hopped to a temping agency, that too no longer exists, nor do the companies they sent me to, from holidays camps, to builders merchants, to security companies, to car sales, to ship chandlers, to law firms, accountants. Some were for a week or two, some were months or longer, most were where the first temp ‘upset’ things so I was the rescue party.

Next stop a Baronial Estate, the job I enjoyed the most, it had the greatest variety. I’d grown up with the family, it certainly topped up my anecdotes supply.  Recently the new 4th Baron (I worked for the third) has decided to no longer operate that area of the various businesses on the Estate, another one closed.

I’d moved on to a couple of companies contracted to work for the Ministry of Defence, both now gone and forgotten.  Finally onto another Government Department section, which is still shuffling the bureaucratic red tape even if the actual building I worked in now has a different function.

Hmm, I wonder where I could put my ‘business black widow’ skills to good use, join the Labour Party maybe or the Trump Administration, how about the banking industry ……….. then again, it might be a wise thing I am now classed as “unfit to work”, I doubt the post brexit economy could cope with me.

 
7 Comments

Posted by on March 14, 2017 in General, Life, people

 

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