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Tag Archives: Bureaucracy

Battle Commenced

After taking an afternoon to read the instructional notes and the forty paged PIP2 form, I ruminated, cogitated, considered, made notes, and sat at my desk last Saturday morning and began the dreaded task.

Okay so the first couple of pages were not so daunting, listing the names, address and last appointment dates of medical professionals I have contact with. They only have boxes for three, I have six, hmm, how to prioritise, those I see the most (Physio, Occ Health) or the more important sounding (Consultant, GP) and make a note to add the others in the ‘additional information’ section.

Now to the gritty part, how my disability affects what I do in general areas of life, how it’s gotten around, what aids are used, what extra is needed. The tick boxes are ticked, then the explanation paragraph, how to be concise and exact to cover all scenarios within the half dozen lines in the box provided. Completing these things can be mentally demoralising because you have to admit, in writing, all the things I cannot achieve and the impact it has every moment of everyday, the exact opposite I am trying to think about every moment of everyday. Also I am so used to doing things the way I do, it is easy to forget it is not the general natural way that ‘ables’ do it, my usual is so normal I don’t think of it as different or awkward, but it needs adding to the form. Always keeping in mind the reader knows less than nothing.

I scribble draft one in pencil on my note pad, edit it, and check the wording for its accuracy and spelling before committing it to the form in ink. As my fingers, wrists and arms are affected by my FSHD I struggle holding the pen/pencil and writing clean and clearly for any length of time can cause strain and cramp, so after three questions that’s enough. Time to put it away and come back to it another day. I returned to it Sunday morning, reread what I had written, add something I had forgotten and start again with the next question, and again on Tuesday, making other notes of what to add in the ‘additional information’ page.

So far I have a detailed letter of support from the Muscular Dystrophy Regional Care Advisor and a lengthy report from the Occupational Therapist, I am waiting to receive a second lengthy report with risk assessment from my Social Worker.

Across the weekend I will finish the form, a friend (former work colleague) is visiting Saturday and she’ll read it through to see if it makes sense. Then Sunday I’ll scan the pages into my computer and copy the reports I have, printing my details on the back of every page incase they get separated in the office. While my BFF is here we will wander to the post office and despite it being a free post return, get a certificate of postage, pay extra for it to be tracked and signed for. I’m wondering what it costs to hire a guy with a briefcase chained to his waist because I am not going to be happy if it goes missing before being properly processed.

The saga continues…..

 
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Posted by on August 30, 2019 in Projects

 

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It did indeed thud

Well the doormat actually groaned as the large A4 sized brown envelope collapsed to the floor. There I was, comfy under my duvet, contemplating my day, waiting for morning carer to arrive when this *thunk* travelled from porch, across the lounge, along the hall, into the bedroom and landed in my dozing lobes.

The accompanying booklet some twenty pages, along with the forty paged form, it’s covering letter and return envelope amounted to a significant hunk of pulled tree.

I’ll be busy for the next couple of weeks while I take time to put together my evidence (which I’ve chased up again) and carefully and concisely complete the questions and add the additional details as required.

This is worse than any examination I’ve ever done, the stakes are pretty high too.

 
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Posted by on August 21, 2019 in General

 

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My Mat Remains UnThudded

Well folks we are a week further along from the telephone call stating that the original PIP2 form has not arrived and guess what ……. it’s still not arrived. *sigh*

I grasp the phone and dial the freephone number (ever wondered what their phone bill looks like 😲). After going through the ‘please visit out web site at ….’ schpeel, the press 1 for this, press 2 for that, press 3 for the other, press # to hear these again, I sit tediously in the loop of a very tinny opening strains of Vivaldi’s Four Seasons which is interrupted with the ‘All our operators are busy right now, please hold or you may wish to call back’, back to Vivaldi before being interrupted 30-seconds later with the same voice.

Seventeen minutes later an actual proper live human person speaks! We whisk through the security questions (I sometimes wonder if I sound too confident and knowledgeable when I answer them, too many times answering the same questions plus too many years asking the same questions). Up shot – call back on Monday if it’s not there – it seems last weeks lady was a tad bit over eager in our Royal Mail operatives.

I explained that I wouldn’t be calling on Monday because it’s Big Sis’s funeral and I don’t think I’ll be coherent enough for business. She was incredibly understanding, made a note on my claim (brain was visualising the old 110 screen from my days as a processor) and said to call on Tuesday or Wednesday.

So in limbo, I wait……

 
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Posted by on August 13, 2019 in General, Life

 

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Brown Envelope Lost

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Well ….. *sigh* ….. it begins.  Remember I said that the dreaded envelope had thudded to my floor?  Well his follow up one hasn’t.

After a mere 17 minutes of listening to the repeated opening strings of Vivaldi’s Four Seasons and uncountable “Please hold” thingy I  got an actual person answered.  After the relevant security questions which I think I zipped through too confidently a new form should be with me in a week – which makes me wonder why the first form was allowed three weeks to get here.  Hmmm…….

 
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Posted by on August 6, 2019 in Grumble, Life

 

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