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Waiting for others

Update ….. ‘still‘ waiting for the Social Worker assessment report. I called to chase up and was called back with someone relaying they message ‘by Thursday’, I’m wondering whether to hold by breath or not.

Today the PIP peeps wrote saying they have all they need to make a decision and there’s no need to contact them (I’m still intending to send the Social Worker report when I get it because I think it’s necessary).

So, I’m waiting on people who are necessarily bothered about time tables and deadlines.

*sigh*

 
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Posted by on October 8, 2019 in Life, Projects

 

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Pic App-titude

Way back I blogged a list of project jobs, one was the ‘ list Mac jobs’ which involved going through the iMac, my iPads, the external hard drive and flash drives, resorting, relabelling, reorganising all the various files, folders, media (music, movie snips, videos) and documents, the biggest job being the reconfigurations of photos.

When I first started keeping photographs on a computer a mere nineteen years ago, I applied my usual office organisation skills and had folders titled with the event, within was a folder containing the originals and a second folder for any that had been edited for whatever reason, made into collages etc. Slowly the collection grew and I began keeping a back-up on a flash drive and when the collection got considerably larger on an external hard drive.

Then I switched over to iMac with its useful (to some degree) iPhoto app. Initially this piece of kit automatically synced all photos anywhere and lumped them in, to then be divided into ‘events’, later also ‘albums’ and finally the annoying adage of ‘faces’ (it scanned your photos and tagged familiar faces). But the downside was that the photo was held in its library and not as an accessible file somewhere, some events had multiples of the same photo but different size or quality but the info was not instantly there for comparison.

Apple, in their questionable wisdom, revamped and released a new image handling app called “Photos” (dropped the i and added the s, bet that was an intense creative meeting). This new app added in the iPhoto library but as a separate folder and again the individual images had all their info hidden. Also I keep an archive of photos relevant to another project and use the file name as info and sometimes keep a second copy with the relevant ©️ info added for uploading to the web. I didn’t get on with this Mac method of handling images and preferred to keep some photos in organised files and some I uploaded to add to similar albums in either iPhoto or photos. It sounds messy doesn’t it? It is!

So, I rolled up my sleeves and got stuck in, I ‘exported’ each album to a folder on the desktop from both iPhoto and Photo, renamed them with the relevant info (exporting creates a whole new image and doesn’t carry over the originals metadata info, nor useful file name). Copied those kept as standard files in my documents into their relevant folders. Upload photos from my old iPad and my iPad Air, named them and sorted them.

The question now was duplicates. I needed a bit of kit to sort through each folder individually and across several folders to highlight any duplicates and show me the details (where it is, what size it is, what file type) so I can decide whether to delete or keep it. After asking Google and checking the App Store reading the reviews I settled on one. Prepped and ready I went through each separate album and then the complete library and was rather impressed that there had not been hundreds to check and check again. Hmm, a seed of niggling doubt crept it. I opened an album “MIAMI 2003” and skimmed through the individual folders, and found a significant number of duplicates! What!! A duplicate finder that didn’t find duplicates, I tweaked the preferences but still it did not find all the obvious duplicates. Back to Google, read more reviews, but I have not run the folders through it yet. I’ve already spent four desk sessions on the job, I’ll leave that for tomorrow. And I’m yet to start on the archive catalogue!

Still, it’s been pleasant flipping through all these photos, being reminded of things I’ve been to, realising what a bad choice that hair or clothes were, coming across that hidden gem.

We have this technology to quickly, easily snap away but do we ever take the time to flip through an album and revisit a memory.

 
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Posted by on October 1, 2019 in Life, Projects, Tech

 

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It’s been quiet ….. too quiet?

It’s been very quiet these past days since BFF jetted back home after our wonderfully restful, fun and encouraging two week pj-party. My days have been filled with pleasing myself between carer visits, maybe fiddling about on the iPad, twiddling some yarn, easing into a computer task, or just feet up watching tv (currently watching I’m Alright Jack, the black and white Peter Sellers movie).

After the past months of worry, anxiety, stress, mammoth personal physical changes, Big Sis’s serious illness, sudden bereavement, Government bureaucracy, so called social services etc the change has indeed a rest. I might even pick up a book!

No news about the yet to arrive Social Worker report, no news from the PIP review form, no new mind bending professional service cock up for me to sort out.

It’ll never last ………. but until then, pass the chocolate biscuits.

 
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Posted by on September 26, 2019 in General, Life

 

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I’s crossed & T’s dotted

The dreaded form was given another read through, I had neglected to make it plain and clear that my physical restrictions were constant and unchanging, no good days or bad days just days. While BFF was here we scanned in my Occupational Therapist report so I had a copy on the computer, printed off the support letter from the MD Care Advisor and another copy of the OT report (even managed to fandangle the two-sided printing!)

We scanned in my completed form, it’s the best way I can keep a copy of exactly what I had written. We made sure I had signed the form, stapled the evidence together and slid it all into the envelope provided, Now even though they provide a freepost address I decided to send it belt and braces. When we went to the Post Office I said I wanted it sent so I could check online to know it’s been delivered, I paid the £7.40 and got the stickers stuck.

Next day I checked the tracker and took a screen grab showing the time, date, address and signature of recipient. Phew, it’s in the building, I have done all I could.

Now I wait ….. wait for the Social Worker report, scan it, print off a copy and send it to them (and hope it finds its way to the rest of my papers) ….. wait for the decision from DWP as to whether there’s a face to face visit or not.

*fingers-crossed*

Phase one complete, begin waiting for phase two.

 
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Posted by on September 17, 2019 in Projects

 

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Unprofessional Professional

August 23rd, the day when plans went wrong and although it was 99% circumstantial I was 100% put out by it all.

The day was supposed to go along these lines, 2:15pm organised care visit to load up the slow cooker and have a toilet stop, 3:00pm social worker visit to update care assessment and risk plans report, 5:30pm Nephew delivers fresh bread, 6:30pm dinner making care visit.

This is what happened, 2:15pm carer arrived, usual pit stop routine, start loading the slow cooker and the phone goes. Social Worker called to make me aware he was running about thirty minutes late. No probs, all good, sit and wait. Postponed BFF’s walking home 4pm phone call. Waited some more. 5:00pm Social Worker wandered in, no apology, no explanation, sat down ready to go through lengthy assessment which needed many edits, as well as corrections and additions. 5:20pm carer arrives, now I could have said it was not convenient but then I wouldn’t know when or who would be arriving and my dinner was brewing, so forego toilet pit stop and while she’s dishing up my noshings Nephew arrives on time with bread.

So here I am, eating my dinner, Social Worker still here going through report, unable to spend quality one to one time with nephew (first opportunity since Big Sis, his Mum, had died and we’d held the service).

Social Worker eventually leaves about 6:15pm with promise to get report done and to me before I need to send my PIP form back.

As no report dropped through my door by 3rd September I telephoned the office to be told my Social Worker was on two weeks annual leave (why didn’t he mention this at our meeting) and was told someone would call me back. 5pm the next day the call is returned and caller says SW had left a note that I ‘might’ be calling about it (too bleeping right, I was waiting for the promised document). Essentially the note was sorry I’ll get it to you after I get back 🙄.

 
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Posted by on September 16, 2019 in Projects

 

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Fun No More (until April)

I’ve been wonderfully distracted for the past two glorious weeks, BFF has been to play, stay, I meant stay. … and this time it was greatly needed by us both. Finally after all the stress, anxiety and sorrow attached to so many happenings I could cry my heart out and get physical console. But all too soon, the suitcase is being zipped up and it’s that dreadful time to try and hold the stiff upper lip and say ttfn.

Pre arrival plans had been put in place, a few DVD’s were ordered, two mahoosive boxes had arrived with the neatest of handwriting upon them (more wool to add to the packed suitcase stash) and the dozen bottles of cherry cola added to the grocery order.

We may both be in our golden years, but you’re never too old for a PJ party, and that’s what we do. It’s not all indulgent fun, there were chores and errands done too, the dentist visit with deep deeeep clean and the annual hospital appointment with my neurologist (test results, blood pressure, heart rate all ‘normal’, never thought that word would be attached to me). I supervised while BFF cleared out, sorted, organised my kitchen cupboards (nothing last century lurking in the dark corners), general tidy up of the bathroom and lounge, the resort and reorganising my bedroom draws and I feel sorted, organised, prepared for carers and helpers, etc.

We’ve mooched up and down my High Street, been back and forth to Morrison’s for eats and treats, sat outside enjoying the sun and breeze, took an afternoon stroll along the esplanade and I, yes me, suggested a ice-cream (it was lush), we even went to the cinema to see Downton Abbey (rather good).

Mostly we snoozed, nattered, laughed, chatted, rested, and watched stuff

  • Last Viceroy House
  • Mad Men Season 6 and 7
  • The Green Book
  • Trumbo
  • Edie
  • A Cat Named Leonard
  • Norma Rae
  • Pursuit Of Happyness
  • My Old Lady
  • The Favourite
  • Colette
  • Don’t Eat The Daisies
  • The Right Stuff
  • Spotlight
  • The Girl On The Train
  • Billy Rose’s Jumbo
  • Glass Bottom Boat
  • Man With A Horn
  • To Kill A Mockingbird

Of course the REAL prime reason for being together is a certain four legged furred charmer, known as Mickey, aka #NotMyCat, wandering in when he pleases, playing with his new toys, choosing one of the many seats to snooze upon, getting head rubs and chin scritches galore.

Three quarters of an hour ago we hugged, smiled, said “call you tomorrow”, and off she goes ……… just 199 days to go until we’re back together *fingers-crossed*

Thank you BFF for being everything I need and a heck of a lot more, words are not enough to convey all you do for me, help me, cajole me, entertain and help me.

 
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Posted by on September 15, 2019 in Films, General, Life, people, Pets

 

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Battle Commenced

After taking an afternoon to read the instructional notes and the forty paged PIP2 form, I ruminated, cogitated, considered, made notes, and sat at my desk last Saturday morning and began the dreaded task.

Okay so the first couple of pages were not so daunting, listing the names, address and last appointment dates of medical professionals I have contact with. They only have boxes for three, I have six, hmm, how to prioritise, those I see the most (Physio, Occ Health) or the more important sounding (Consultant, GP) and make a note to add the others in the ‘additional information’ section.

Now to the gritty part, how my disability affects what I do in general areas of life, how it’s gotten around, what aids are used, what extra is needed. The tick boxes are ticked, then the explanation paragraph, how to be concise and exact to cover all scenarios within the half dozen lines in the box provided. Completing these things can be mentally demoralising because you have to admit, in writing, all the things I cannot achieve and the impact it has every moment of everyday, the exact opposite I am trying to think about every moment of everyday. Also I am so used to doing things the way I do, it is easy to forget it is not the general natural way that ‘ables’ do it, my usual is so normal I don’t think of it as different or awkward, but it needs adding to the form. Always keeping in mind the reader knows less than nothing.

I scribble draft one in pencil on my note pad, edit it, and check the wording for its accuracy and spelling before committing it to the form in ink. As my fingers, wrists and arms are affected by my FSHD I struggle holding the pen/pencil and writing clean and clearly for any length of time can cause strain and cramp, so after three questions that’s enough. Time to put it away and come back to it another day. I returned to it Sunday morning, reread what I had written, add something I had forgotten and start again with the next question, and again on Tuesday, making other notes of what to add in the ‘additional information’ page.

So far I have a detailed letter of support from the Muscular Dystrophy Regional Care Advisor and a lengthy report from the Occupational Therapist, I am waiting to receive a second lengthy report with risk assessment from my Social Worker.

Across the weekend I will finish the form, a friend (former work colleague) is visiting Saturday and she’ll read it through to see if it makes sense. Then Sunday I’ll scan the pages into my computer and copy the reports I have, printing my details on the back of every page incase they get separated in the office. While my BFF is here we will wander to the post office and despite it being a free post return, get a certificate of postage, pay extra for it to be tracked and signed for. I’m wondering what it costs to hire a guy with a briefcase chained to his waist because I am not going to be happy if it goes missing before being properly processed.

The saga continues…..

 
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Posted by on August 30, 2019 in Projects

 

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