Well that is the plan …. maybe. As many regular readers may remember I have a muscle wasting disease called fascia-humeral-humeral Muscular Dystrophy, it’s slowly getting worse rendering me weaker so simple tasks become a complete nightmare, some impossible. Skills and abilities, hopes and dreams have been taken away bit by bit.
Last year I began experiencing serious issues getting stood up from my desk. Now my desk is important to me. It is my link to outside life, other than the practical chores like paying bills or shopping for groceries or gifts or writing letters and emails, it is also my coffee shop where I interact with the world through social media, forums and such. It is where I create, code, make web updates, edit photos, write book reviews and blog posts and where I listen to music as I work. My mornings are usually spent at the desk dealing with business after that first cup of coffee. That was the issue that made the problem, a problem, because I’d need a wee. My ‘alternate’ route was to shuffle onto the dining chair, then scooch (technical term) across to the sofa, shift to the sofa, get up stood and trot off to the bathroom, sounds a palavar, it is when you are bursting! So I stopped being at my desk as much or for as long, which stopped me listening to music, which stopped me spending as much time creating, which stopped me writing letters and emails to family and friends, which had me putting off jobs! projects! research etc. I have my iPad but it’s not the same, there are things I need to do on my Mac at my desk.
It took a while to admit defeat, it took longer to try and seek an answer. I’m tired of investing hope to be disappointed, or struggling constantly for no reward. Anyway, I sourced a company who sent their physiotherapist to come visit me and evaluate my situation. Several hours later, after numerous getting ups to show my technique and what I hoped to achieve, he left and the next day sent me details and costs of a wizzy chair and desk. I was hopefully, but also realistic that even when it all arrived it would take several attempts, many many failed attempts, to get stood up from my desk in a reasonably straightforward consistent manner, like I do from the bed, the loo and the sofa (the only other spots I can get up from).
On Wednesday last week the desk, which can rise from knee height to standing working height and has preset buttons to automatically adjust to a height set to a particular millimetre, was built and installed with the new three draw unit beside it, the wizzy chair which rises up and down via a button touch, has wheelers that can be breaked, with arms that drop to be level with the seat, has a lockable swivel, as well as adjustable tilt, back rest, head rest, was wheeled in. I took a seat proudly……got comfy…..and then couldn’t get up. Okay, no prob, just need to get the feel, learn where the chair needs to be, learn and set the desk at just the right height and if not on the first go by the third it will be set. Erm, no. It ain’t happening, I ain’t progressing ….. it is annoying because I cannot sense what is going wrong, what needs to change to achieve the goal. Is it mental me expecting too much giving in too soon, menopause me with all sorts out of sorts, or MD me weakening have I left it too late.
Today I had my lunch at my desk, a list of got to get done jobs, played some favoured tunes to motivate and after a couple of hours tried getting up, couldn’t, so carried on getting more done, enjoying the fun of being at my desk. Then shuffled across to the sofa.
Maybe another day will work, who knows *shrug*