Well, what is a vowel between a world famous author and an avid reader of the disk world series?
Sir Terry Pratchett has used my word to describe the feeling you get when your degenerative condition invades your life and stops you doing the things you want to do. I am quite sure he is deeply upset at this decision and for what has caused him to make it.
My word? I day ‘umbuggerance’ when my own condition causes me to have to make a decision I don’t want to, or rather makes the decision for me, the wrong one that I would choose for myself.